pratt's first bunking party.

here are pictures from pratt and anderson's first sleepover! as you can tell, pratt loves anderson. he would just smile at him. and he tried on several occasions to grab his face. i'm certain he was doing it just to be sweet...but we had to be careful. he's a sneaky little guy.

and last night we got to visit with bethany, michael and their little man named cash. i mean, how cute is he!? he LOVED pratt's horsey!



and this morning, clara took some pictures of me and pratt reading. thank you clara! it seems that mommy's are always taking the pictures...rarely are we in them! and pratt and i love book time...so these are extra special pictures.

i believe we're reading "llama, llama red pajama" and "the lonely firefly". two of pratt's favorites. as you can tell by his face. he's totally super cute.





also here is the latest update on zoe goss. this was posted thursday.

On the launching pad

Posted 1 day ago

I would like to apologize for not posting last night. We have noticed that we face the evenings with very little energy. A few hours of rest and we are ready to tackle a new day.

Yesterday, Zoe had an infusaport placed. This will allow access to a larger vein for chemotherapy, bloodwork, antibiotics, etc. and keep her from having an IV. She cannot stand the tape they use to secure the IV. She also underwent bone marrow biopsy from both hips yesterday. Gratefully, she was sedated and intubated through all of this.

Amazing...before last week she had not been sick a day in her life! When we went to the hospital last week, we knew nothing of allergies, reactions to anesthesia, medical history, etc. and now we know she does not tolerate oxycodone and LOVES versed. Two surgeries in less than a week. Wow!

So...What's next? I will make an attempt to explain. We know at this point that she is at least Stage 3 with Intermediate Risk. Stage 3 because her tumor cannot be removed surgically(because of vascular involvement) AND crosses midline(spine.) It does not appear to have spread at this time. She is automatically intermediate risk because she is Stage 3 age greater than 1 year. Depending upon the return of studies sent, she may stay at this level or go up. If tissue is found to be "unfavorable" and/or MYCN "amplified," she becomes Stage 3 High Risk. If bone marrow returns with evidence of spread, she becomes Stage 4. At her current level, she will undergo 4 cycles of chemotherapy 3 weeks apart(12 weeks total.)

We will then reevaluate the tumor. Let's hope that is where we stay!!

To see her, you would not believe this is happening. Even after her surgeries she requires very little Tylenol and is playful. It makes me angry to think of the creature growing inside of her and often I think I should slow her down to slow the tumor growth. What a kink in the road!!

For now, we will await the studies. We should know by the middle of next week. She will then begin therapy.

Please continue to pray with us!